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About Us
Vision
We are committed to creating a future where no child suffers from preventable or curable blood and inherited metabolic disorders. We believe that every child deserves timely diagnosis, expert medical guidance, access to advanced curative therapies, and compassionate long-term care. Our work focuses on building an integrated healthcare support system that combines prevention, early diagnosis, treatment access, and family support for children affected by hemoglobenopathies, marrow failure, metabolic and innuno deficiencies disorders.
Family Support
Healing extends beyond treatment. We provide holistic support services for children and their families, including:
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Counselling
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Nutritional guidance
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Family Screening
We strive to ensure that every family feels supported throughout their journey.
Access to Curative Therapy
Many children suffering from severe blood and metabolic disorders can be cured through Hematopoietic Stem Cell Transplantation (HSCT). We support families throughout the transplant journey by providing:
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Patient identification
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Donor selection via free HLA typing
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Pre-transplant preparation
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Transplantation
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Post transplant follow up and care
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Financial support for transplant procedures
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Post-transplant monitoring and survivorship care
We particularly support children affected by:
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Thalassemia Major
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Sickle Cell Disorder
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Bone Marrow Failure Disorders
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Immune Deficiency Disorders
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Metabolic Disorders